Standard lexy sang happy birthday to pat  cake with candles. the kids blew them out with him

The "Alexa" Project

Monica Delos Reyes / Honor Pages

We are helping cc-TDI raise money for the PILOT PROGRAM of THE 'ALEXA' PROJECT. (Named in honor of our own Alexa Naomi delos Reyes by Dr. Keller himself.) The goal of The Alexa Project is to find new treatments to move towards clinical trials for Alexa all children affected with the Neurofibromatosis-1 (NF1) associated brain tumors called juvenile pilocytic astrocytoma (JPA). The funds will be used for a Summer Research student the key starting piece of the project. Here’s what she/he would do: 1. Create a road-map for NF1-associated JPA and carefully determine all the cell lines for NF1-associated JPA, both from patients and from mice; 2. Get the word out to collect more surgical (and autopsy) NF-1 JPA tumor samples for use in making more cell cultures and cell lines, akin to http://focusonrhabdo.org/bio-specimen-donation/#.VPOEXPnFTo. After the Summer Student does this, the project swings into full gear!
  • $5,864

    Raised

  • $5,000

    Goal

  • 51

    Supporters

Recent Transactions

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    Judy Ciaffoni

    $864.00 / 1653 days ago

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    Monica delos Reyes

    $44.00 / 1784 days ago

    The "Alexa" Project is now COMPLETE!!!!! We wish to thank Every single person and group that raised money for Alexa to see her dream of a possible cure in her lifetime for her and her friends. Thank you for the latest wonderful donations Adam Tidmarsh and family for the $50 for the awesome house concert he did for the project. Thank You to Jean and all her friends <3 Thank You to Maria Douerghty for raising the $60 from your make up fundraiser. Thank You to Chasity Owings for making the bracelets and the Donation of $20 Thank You to Matt, Starlit, Chasity and Andy, Rick and Sheila for the $700 last week & finally........................................ To the Wonderful Nicholson Family RICK AND SHEILA NICHOLSON FOR GIVING THE FINAL TOTAL TO PUT US AT 100% FUNDED THEY PUT IN $350 TO CLOSE THE FUNDRAISER AND FULLY FUND IT LOVE AND HUGS AND SO MUCH THANKS FROM THE BOTTOM OF OUR FAMILIES HEARTS <3 WE WILL FOREVER BE GRATEFUL TO YOU FOR YOUR FAMILIES GENEROSITY AND CARING FOR OUR PRINCESS AND OUR FAMILY.

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    Adam Tidmarsh

    $50.00 / 1784 days ago

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    Sheila Nicholson

    $350.00 / 1784 days ago

    From Rick & Sheila Nicholson (PaPa & Mimi). Fulfilling our commitment to complete the "Alexa" Project. We love you !!!!!!!

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    Chasity Owings

    $20.00 / 1784 days ago

    Donation from sales of Cancer awareness bracelets made. Love y'all!

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    Jean Fitzgerald

    $20.00 / 1785 days ago

    This donation is from a dear friend of mine...Lorraine Vanderzandin...she has been keeping up with Alexa, through me, for years!

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    Maria Doherty

    $60.50 / 1786 days ago

    Sending my love, prayers and positive thoughts to you all!

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    Lori Croshaw

    $50.00 / 1788 days ago

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    Elaine Hansen

    $101.50 / 1791 days ago

    In honor of Lexy who fights her cancer with amazing spirit and courage.

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    Judi Newton

    $5.00 / 1792 days ago

    I love you Lexy! XO Judi at Sunshine Snail Mail XO

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    Hannah Mocaby

    $100.00 / 1792 days ago

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    Mary Sprouse

    $100.00 / 1792 days ago

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    Monica delos Reyes

    $700.00 / 1792 days ago

    This $700 was from the amazing families of the NICHOLSON family Rick & Sheila Nicholson (Papa Rick & Mimi) Matt & Starlit Nicholson, Chasity & Andy Owings and Dawn & Tim Rosseter We love you and our families MRL Motorsports means the world to us. God Bless You all and thank you from the bottom of our Hearts <3 The delos Reyes Family

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    Monica delos Reyes

    $65.00 / 1795 days ago

    (DONATION #3) This Donation was made for Alexa (Princess Lexy) by the wonderful, kind and Generous Valet men & Women at Doernbecher Children's Hospital. THANK YOU FROM THE BOTTOM OF OUR HEARTS FOR DONATING ALL YOUR TIPS UNTIL THE END OF MAY <3 Jeff, Alan, Amy Hannah, Greg, Darrin, Todd, Paul, To Mas, Samuel, William, Rose, Ian, & Kevin God bless you all for your Love 4 Lexy - HUGS from Lexy & the delos Reyes family

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    Anonymous

    $137.03 / 1795 days ago

    This Donation was made for Alexa (Princess Lexy) by the wonderful, kind and Generous Valet men & Women at Doernbecher Children's Hospital. THANK YOU FROM THE BOTTOM OF OUR HEARTS FOR DONATING ALL YOUR TIPS UNTIL THE END OF MAY <3 Jeff, Alan, Amy Hannah, Greg, Darrin, Todd, Paul, To Mas, Samuel, William, Rose, Ian, & Kevin God bless you all for your Love 4 Lexy - HUGS from Lexy & the delos Reyes family

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    Penny Joss

    $50.00 / 1795 days ago

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    Anonymous

    $25.00 / 1796 days ago

    Hi! Thanks for sharing this research project with me today! Peggy

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    Adam Tidmarsh

    $20.00 / 1796 days ago

    Just a little money from an office sweepstakes on our General Election in the U.K tomorrow.

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    Judith McLeod

    $100.00 / 1797 days ago

    Keep fighting! Good Luck!

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    Daniel Rush

    $101.50 / 1798 days ago

    Happy to help :-)

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    Meritt Larson

    $253.75 / 1798 days ago

    Keep fighting Lexy!!! Love from your teammate Brett Larson's family!

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    Adam Tidmarsh

    $20.00 / 1802 days ago

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    Adam Tidmarsh

    $410.65 / 1802 days ago

    With Love from Taunton, England. The Tidmarsh family would like to thank their friends and colleagues at Brendon House and North Town school for their generosity. 😊

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    Anne McLaughlin

    $101.50 / 1807 days ago

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    Jean Fitzgerald

    $81.20 / 1813 days ago

    This donation is from very dear friends of mine and I thank them from the bottom of my heart...JAN SCHURZ, MARION RYAN, NANCY NOEL and DIANE FIELD. (((BIG HUG GUYS)))

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    Monica delos Reyes

    $50.75 / 1813 days ago

    This $50 is from a special Lady in Worcester MA. (Teacher Carol) Carol Fotos. When we were staying at the Sherry's House for children with Cancer and their families She made a space in her schedule to teach Alexa she read to her they worked on braille and other school curriculum. They became such close friends our entire family love this lady to the Moon and Back <3 Thank You so much for believing in The "Alexa" Project God Bless You!! We love you for your kindness and Love for our Lexy.

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    Monica delos Reyes

    $101.50 / 1813 days ago

    This $100 is from Michael Dulin - Alexa met him for the first time last year April 2014. We loved his music My aunt showed my mom a song called Lullaby for Alexa and I told him I loved it we listened to it during Chemo He became friends with Lexy (Alexa) and He re-published the sheet music for Lullaby for Alexa dedicating it to her. He also said he would give Alexa 25% of all the sales of the sheet music for "HER SONG" He presented her with a Check for $100 for her medical. We told him we were donating it to finding a cure for Alexa through The "Alexa" Project. THANK YOU MR. MICHAEL DULIN God Bless your Kindness and Generosity.

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    Monica delos Reyes

    $148.19 / 1813 days ago

    This Donation was made for Alexa (Princess Lexy) by the wonderful, kind and Generous Valet men & Women at Doernbecher Children's Hospital. THANK YOU FROM THE BOTTOM OF OUR HEARTS FOR DONATING ALL YOUR TIPS UNTIL THE END OF MAY <3 Jeff, Alan, Hannah, Greg, Darrin, Todd, Paul, To Mas, Samuel, William, Rose, Ian, & Kevin God bless you all for your Love 4 Lexy - HUGS from Lexy & the delos Reyes family

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    Beverly Atchison

    $50.00 / 1820 days ago

    God bless all of you, dear children. I will keep all of you in my prayers that you will soon be well as research discovers more medications to help the healing process.

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    Jean Fitzgerald

    $114.36 / 1821 days ago

    This donation is a joint effort by my friends Shannon L Nelson-Deighan, Stephanie Sameth, Pauline Di Pasquale, and Barbara Drageaux. Thank you so much for your generous donations dear friends!

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    John Fitzgerald

    $30.00 / 1826 days ago

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    Dorothy Davidson

    $50.75 / 1828 days ago

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    George Fitzgerald

    $30.00 / 1831 days ago

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    Barbara Walton

    $100.00 / 1831 days ago

    Alexa is a beautiful young woman. And Jean Fitzgerald is a beautiful older woman. How lucky I am to know both.

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    Andrea Whiteman

    $30.00 / 1833 days ago

    Alexa deserves a healthy, cancer-free, life and I hope this donation can help to make that happen. Love this family so much!!

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    Judy Ciaffoni

    $50.00 / 1833 days ago

    Alexa is my hero! Along with all other children who stuggle to survive everyday! I always have her in the back of my mind! She and her amazing family and other family warriors are couragous soldiers paving a passage way for all to follow to the unknown in hopes of having a cure!!! Having the courage to persevere through countless years of uncertainty,( If they are lucky to have years ), of never knowing what may happen next to their children! Only parents who fight everyday with their children to survive, bravely carry on daily to give their children a chance of life! (Hope Floats) is my favorite saying! Until we find a new cure, then we at least need new medications that will make a difference in their lifes! HOPE FLOATS! WE HAVE TO FIND ANSWERS FOR THE CHILDREN !

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    Annette Ingram

    $500.00 / 1834 days ago

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    Russell Lovett

    $101.50 / 1834 days ago

    I will support the Alexa Project to keep a smile on Lexy's face to have her give a big Thumbs Ups to us all

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    Autumn North

    $20.30 / 1834 days ago

    I love you Lexy BFF's 4 ever <3

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    Cati Currier

    $5.00 / 1835 days ago

    Lexy, I've been praying for God to make you better for a long time now, and I think that this could be an answer to prayer!!! I love you sweetheart!! Great big polarbear hugs!!!

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    Megan McMillan

    $5.00 / 1835 days ago

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    Alexander Hanson

    $15.00 / 1835 days ago

    I hope every little bit helps.

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    Judy Penny

    $20.00 / 1835 days ago

    Blessings to you, Alexa, and a big Happy Birthday to Jean!! Love, Judy Penny

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    Cindy Myers

    $60.00 / 1835 days ago

    To my friends, Alexa's sisters, Vanessa and Jenna, are my family. Please help this family if at all possible. Thank you very much!

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    Blake Parker

    $20.00 / 1836 days ago

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    Elisabeth Grunwald

    $100.00 / 1836 days ago

    Jenna, you are such an amazing young women and I hope your sister can be just like you some day!

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    Patricia Kerl

    $15.00 / 1836 days ago

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    Brandi Hendryx

    $50.00 / 1836 days ago

    We love you Lexi! 💞The Hendryx Family

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    Michael Fletcher

    $50.00 / 1836 days ago

    Good luck!

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    Carol McGuirk

    $25.38 / 1836 days ago

    Good luck to our special warrior princess! I hope you achieve this goal!

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    Celeste Firmin

    $25.00 / 1836 days ago

    God bless my little princess Alexa--she is a strong and brave little girl--lets find a cure NOW--

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    Shawna Mundy

    $20.00 / 1836 days ago

    Miss you Alexa!!!!

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    Michelle Adams

    $20.30 / 1836 days ago

    Lots of Hugs Princess Lexy :)

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    Matilda Garcia

    $20.30 / 1836 days ago

    My continued Prayers for you Lexi and every family going through this journey in life. Believing with you all for Your miracles. God Bless ((( H <3 gs)))

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    Patrick North

    $30.45 / 1845 days ago

    NEGU Lexy <3

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    David Bowman

    $25.00 / 1847 days ago

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    Jean Fitzgerald

    $100.00 / 1850 days ago

    OMGosh...I am over the moon with THE ALEXA PROJECT...!!!

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    Karen Blanchette

    $25.00 / 1851 days ago

    Wishing you the very best in your life. Have hope, faith and know you are surrounding by so many people who love you so much! I love and miss you Miss Lexy!!!!!!!!!!! You are one of the sweetest girls I know. Kick Cancers Booty Girl!

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    Darlene English

    $25.00 / 1851 days ago

    Alexa has been fighting this Cancer since she was Fourteen Months. She just celebrated her 12th Birthday (Thank You God!) Childrenb really need New Treatments for Brain and other Cancers. We are using Old Chemos :-( We need New Treatments and New Hope! Please Support this Research! <3 <3

About The "Alexa" Project

We first heard about Dr. Charles Keller when he was creating a new research project at our hospital OHSU in Portland, Oregon. He had a Courage Wall of fighters and their families. We submitted a photo of Cameron & Alexa - he was kissing her head and it was beautiful. He said it was one of his very favorite photos! This inspired the researchers to work hard for the faces they saw on that wall, for Alexa and other children fighting cancer. We were so honored.

Recently, Dr. Keller called us and asked to use the photo again in Colorado at his new research facility: the Children's Cancer Therapy Development Institute. We will do anything for research and awareness of cancer and NF! I sent him all I had on Alexa so he could get to know HER. He then called and proposed this new project - The "Alexa" Project - which would actually create real treatments that could go to clinical trials. A REAL CHANCE AT A CURE FOR CHILDREN WITH CANCER RELATED NF-1 JPA BRAIN TUMORS!

This project starts with PHASE #1 - a Summer Research Student. Our goal is to raise $5,000 to fund this student, who will lay all the ground work, and find all the genetic resources to create the road map to get to PHASE #2. In Phase #2, all the information will be used to create an international collaboration to further create new drug therapies to go to clinical trial for these  tumors.  (For more information, contact the research team directly at http://www.cc-tdi.org/#!team/c24vqHere is information on cc-TDI's work on DIPG - which is an amazing breakthrough - which goes to a Phase I trial in 2015: http://www.cc-tdi.org/#!research/cfvg)

With your help, we can have NEW drug therapies for Alexa's type of tumor within a couple of years. SO PLEASE JOIN WITH ALEXA & OUR FAMILY TO RAISE MONEY FOR THE PILOT PROGRAM FOR THE "ALEXA PROJECT!"  Thank You and God Bless.

Sincerely,
The delos Reyes family   

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