Team Alexis

Jonathan Agin / Honor Pages

In April 2008, our family was changed forever when Neely and I heard four of the most chilling words a parent can ever hear: “your child has cancer.” Since Alexis’ diagnosis and her passing, Neely and I have maintained an unwavering commitment to trying to help other parents who hear those same words. Thank you for supporting our mission!

  • $3,270

    Raised

  • $10,000

    Goal

  • 7

    Supporters

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About Team Alexis

In April 2008, our family was changed forever when Neely and I heard four of the most chilling words a parent can ever hear: “your child has cancer.” Our daughter Alexis was only 27 months old at the time of her diagnosis with an inoperable and terminal brain tumor known as DIPG. Given 9 to 12 months to live with conventional treatments offered at that time, Alexis fought heroically for 33 months, enduring 4 different Phase I and Phase II clinical trials. The search for treatments took us from up and down the East Coast from our local hospital, Inova Fairfax, to Children’s National Medical Center, NIH, CHOP in Philadelphia and Sloan Kettering in New York City. Unfortunately, the answer and search for an effective treatment never came and Alexis passed away on January 14, 2011. She was 2 weeks shy of her 5th birthday. 

Alexis was able to light up a room with her smile, her sweet voice and her inquisitive nature. Her piercing blue eyes truly provided a window into an amazing little girl. She drew people into her and was always surrounded by other children and adults alike. Alexis loved doing artwork and art projects, and we are fortunate to be able to cherish the literally hundreds of works that we have preserved. Alexis never wanted to sit still. There always had to be a plan for each and every day. And there always had to be a destination or a friend or an activity. One of the hallmarks of Alexis’ personality was an unwavering stubbornness that served her well through the course of her diagnosis. Alexis lived life with dignity and strength and truly transcended her small physical body.

Since Alexis’ diagnosis and her passing, Neely and I have maintained an unwavering commitment to trying to help other parents who hear those same words. Through raising funds for research, offering assistance to parents who simply need someone to talk with, or working to collect toys and books for our local clinic and hospital, Neely and I truly believe that we do so to honor the life and memory of Alexis. Through my personal involvement with cc-TDI, I am firmly convinced that we will be able to provide true hope for many parents searching for answers and better treatments. We would be honored if you would consider supporting this mission and choose to make a contribution to cc-TDI.

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